http://www.livingonadime.com/
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My 6 year old daughter has been showing signs of FM for about 9 months now.
I have both CFS and FM and I do believe that at least CFS is genetic. My mom, brother and I came down with CFS but the exchange students who were living with us didn’t. Mom and my brother don’t have FM.
Anyway, she has been very tired, falling asleep just after taking an hour nap.
Always “taking a little rest” as she calls it and just comes in after playing just for a few minutes.
Very sensitive to heat. It’s been cool the last couple of days after horrid heat and she is doing so much better!
Today I was giving her a love pat on the buns and accidentally missed and got her lower back. She about went through the roof with pain and I barely tapped her.
Every time I would help her up to help me bake she would would yell, “mom your hurting me!” when I would pick her up under the arms.
That got me to thinking because the very same places almost puts me in tears when it gets bumped or hit.
I then tested all the trigger points and some that weren’t. (I didn’t tell her that was what I was doing.)Every trigger point she said hurt and the others didn’t.
When she first started getting really tired about 9 months ago I took her to the doc and they did a bunch of blood work. They tested for anemia and diabetes and a couple of other things.
He just said “it’s a growing spurt” I said I’ve never heard of kids having a 9 month growing spurt he said “yeah it happens all the time”. (I’m really starting to dislike doctors)
She loves to be active but when we go on family bike rides she has to “rest” every couple of blocks.
She has also had these horrible dark circles under her eyes since she was 1 1/2. I have taken her to many doctors countless times trying to get it figured out. They kept telling me was just allergies. The problem was she was doing this in the winter when there weren’t any allergies and when she is on allergy meds. According to her tests she is just allergic to grass and maple trees, all summer things. I think they are from not sleeping well.
They took out her tonsils and adenoids and it did help some but not much.
It does make me sad. I know it’s not life or death but I know how hard it is to be worn out all the time and want to do things but you just can’t get your body to do it. I hate to have to see her go through that.
On the up side, I have it too so I will be able to fight for her with the docs and the school etc. since I totally understand and know not to give up until I find some cooperative people to help.
Tawra
http://www.livingonadime.com/
Hi Tawra…I’m sorry to hear about your daughter. It certainly makes us feel helpless when we can’t help them. I have a 6yo boy with severe allergies and a 15yo with numerous learning disabilities & behavorial issues. I know about the fight that you will face but being a mom, there’s no one better for the battle! Stick to your guns and we’ll be here to back you all the way!
Dear Kellam Family—
We will be praying for all of you as you face this battle together. Whew! We’re grieving with you at this news.
We’re so glad that you can already see at least part of the bright side to this situation, too (that’s a real strength the Lord has given you guys!): That Elly’s strong and wise mama is equipped like no other to advocate for her medically and otherwise!!
God bless and protect all of you.
In Him,
Kimberly